Information and examples of the surveys participants will be asked to complete throughout the study
PROMIS-57 v2.1
The PROMIS-57 survey measures pain interference and pain intensity by administering a fixed number of items from 7 PROMIS domains: depression, anxiety, physical function, pain interference, fatigue, sleep disturbance, and ability to participate in social roles and activities. There are 8 questions per domain, plus an additional pain intensity 0-10 numeric rating scale. The profiles are universal rather than disease-specific. They assess all domains over the past 7 days, except for physical function, which has no time frame specified. The PROMIS 57 v2.1 has been validated for use with kidney transplant recipients.
Estimated time to complete: 5 minutes
Monthly
Neuropathic Pain Quality 5a scale and the Nociceptive Pain Quality scale
These surveys contain 5 questions each with answers provided on a scale from 1-5 and ask about patient’s pain quality over the prior 7 days.
Estimated time to complete: 5 minutes
Monthly
Nociceptive Pain Quality
Kidney Disease Quality of Life (KDQOL-SF) v1.3
The KDQOL is a kidney disease-specific survey assessing health-related quality of life. It contains 36 questions centered around symptoms/problems, effects of kidney disease, burden of kidney disease, work status, cognitive function, quality of social interaction, sexual function, sleep, social support, staff encouragement, and patient satisfaction.
Estimated time to complete: 10 minutes
Monthly
Perceived Stress Scale
This survey measures the degree to which an individual appraises their life circumstances during the previous month as stressful. It consists of 10 items using a 5-point Likert scale ranging from 0 (never) to 4 (very often).
Estimated time to complete: 5 minutes
Monthly
VioScreen Food Frequency Questionnaire
VioScreen is an on-line dietary questionnaire that gathers information about your diet. Easy to follow prompts will guide you through the process of collecting information about the foods you eat on a daily, weekly and monthly basis.
Estimated time to complete: 30 minutes
Three times throughout the study at months, 1, 3, and 6