Information and examples of the surveys participants will be asked to complete throughout the study
PROMIS-57 v2.1 Heading link
The PROMIS-57 survey measures pain interference and pain intensity by administering a fixed number of items from 7 PROMIS domains: depression, anxiety, physical function, pain interference, fatigue, sleep disturbance, and ability to participate in social roles and activities. There are 8 questions per domain, plus an additional pain intensity 0-10 numeric rating scale. The profiles are universal rather than disease-specific. They assess all domains over the past 7 days, except for physical function, which has no time frame specified. The PROMIS 57 v2.1 has been validated for use with kidney transplant recipients.
Estimated time to complete: 5 minutes
Monthly
Neuropathic Pain Quality 5a scale and the Nociceptive Pain Quality scale Heading link
These surveys contain 5 questions each with answers provided on a scale from 1-5 and ask about patient’s pain quality over the prior 7 days.
Estimated time to complete: 5 minutes
Monthly
Kidney Disease Quality of Life (KDQOL-SF) v1.3 Heading link
The KDQOL is a kidney disease-specific survey assessing health-related quality of life. It contains 36 questions centered around symptoms/problems, effects of kidney disease, burden of kidney disease, work status, cognitive function, quality of social interaction, sexual function, sleep, social support, staff encouragement, and patient satisfaction.
Estimated time to complete: 10 minutes
Monthly
Perceived Stress Scale Heading link
This survey measures the degree to which an individual appraises their life circumstances during the previous month as stressful. It consists of 10 items using a 5-point Likert scale ranging from 0 (never) to 4 (very often).
Estimated time to complete: 5 minutes
Monthly
VioScreen Food Frequency Questionnaire Heading link
VioScreen is an on-line dietary questionnaire that gathers information about your diet. Easy to follow prompts will guide you through the process of collecting information about the foods you eat on a daily, weekly and monthly basis.
Estimated time to complete: 30 minutes
Three times throughout the study at months, 1, 3, and 6